Sometimes when receiving factor therapy, our patients find that they need to speak with others taking part in the same type of treatment. They have questions and concerns, or just want to compare notes and share their experiences. Often, they are seeking information about what medical, educational and interpersonal resources are available. It's also a chance to learn what's new in the field of hemophilia and von Willebrand's disease.

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The following support groups are available for information and resources at little or no cost:

The National Hemophilia Foundation (NHF)
www.hemophilia.org
116 West 32nd Street, 11th Floor
New York, NY 10001
(212) 328-3700
Toll-free (800) 42-HANDI
Fax (212) 328-3777
Email: info@hemophilia.org

(Visit www.hemophilia.org for web links to various chapters across the country.)

The Hemophilia Federation of America
www.hemophiliafed.org
102 B Westmark Blvd
Layfayette, LA 70506
(337) 991-0067
Toll-free (800) 230-9797
Fax (337) 991-0087
Email: jhamilton@hemophiliafed.org

HANDI Information Service
handi@hemophilia.org

The World Federation of Hemophilia (WHF)
www.wfh.org
1425 René Lévesque Blvd. W. Suite 1010
Montréal, Québec
H3G 1T7 Canada
Tel.: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: wfh@wfh.org

Hemophilia Galaxy – a Baxter-sponsored web site for patients and their families about hemophilia
www.hemophiliagalaxy.com

All About Bleeding – an Aventis-sponsored web site for patients who have or suspect they have von Willebrand's Disease
www.allaboutbleeding.com

Agency for Health Care Policy and Research
www.ahcpr.gov

Centers for Disease Control and Prevention (CDC)
Hematologic Diseases Branch
www.cdc.gov/ncbddd/hbd/hemophilia.htm

Centers for Medicare and Medicaid Services (formerly HCFA)
www.cms.hhs.gov

Children's Defense Fund
www.childrensdefense.org

Coalition for Hemophilia B
www.boygenius.com/cfb

Families USA Foundation
www.familiesusa.org

Health Insurance Association of America
www.hiaa.org

Hemophilia Federation of America
www.hemophiliafed.org

Hemophilia - Pediatrics
www.pediatrics.about.com/library/weekly/aa050600.htm

Hemophilia Region 6 Comprehensive Hemophilia Care
www.hemophiliaregion6.org

L.A. Kelley Communications, Inc.
www.kelleycom.com

Medic Alert
www.medicalert.org

NHF's YouthWorld
www.hemophilia.org/youthworld/index.htm

Project Red Flag Message Board
www.hemophilia.org/News/prfnews.htm

Patient Services Inc. (an organization that helps with insurance needs and provides supplies that home health companies no longer can)
www.uneedpsi.org

Shemophilia (Women with Bleeding Disorders)
www.shemophilia.org

Social Security Administration
www.ssa.gov

The Robert Wood Johnson Foundation
www.coveringkids.org

US Department of Health and Human Services
www.insurekidsnow.gov